How to support a person with self-stigma due to HIV+ status
Tinashe Madamombe
27 March 2025
Self-stigma can cause shame and isolation for people living with HIV. Your support can help them regain confidence, seek treatment, and live positively. Here is how to offer meaningful support and encouragement.
HIV self-stigma is also known as internalised stigma or self-limiting beliefs. It happens when a person living with HIV accepts negative beliefs about HIV from society. Self-stigma can come from ‘anticipated stigma’. This is when the fear of facing discrimination is more than the actual experience of it. Self-stigma can lead to feelings of shame, worthlessness or guilt. People experiencing self-stigma may isolate themselves from friends and family. They may avoid going to clinics and even stop having sex. It is important to address self-stigma. It affects mental health, adhering to treatment and quality of life.
One way to help someone to overcome self-stigma is to create a safe environment for open and non-judgemental conversations. Someone experiencing self-stigma may find it hard to talk about their feelings. They are scared of rejection or judgement. Encouraging them to talk about their emotions can help ease their burden. Listen, avoid judgement, and remind them that their HIV status does not define their worth. It's also important to talk about HIV in everyday conversations.
Another way to help someone overcome self-stigma is by offering emotional support. Reassure them that their worth is not defined by their HIV status. Encourage them to seek counselling and to join peer support groups. Peer support groups are a great way to connect with other people living with HIV and get helpful advice to live positively. Offer companionship and remind them that they are not alone on this journey.
You can help people overcome self-stigma by giving them accurate information. Many people self-stigmatise due to myths and misconceptions about HIV. Educate them on how treatment allows people to live long and healthy lives. Let them know they can still have great sex without passing on HIV to their partners. There are lots of prevention options. Condoms, pre-exposure prophylaxis (PrEP) and post-exposure prophylaxis (PEP) are a few. Challenge harmful beliefs which drive shame and isolation when you come across them. Ensure that you use reliable information from sources like Be in the KNOW. Share it with HIV positive people in your life so that they stay informed and empowered. Our living with HIV page is a great place to start!
Self-care is essential to overcoming self-stigma. Ensure that you support their efforts to maintain a healthy lifestyle. This can be through encouraging them to adhere to medication, eat well, and stay active. Encourage them to meet up with friends, find hobbies and join support networks. This helps build their self-esteem. You can also promote self-acceptance through affirmations.
Remember and remind them that having HIV does not make someone less worthy. With the right support, people living with HIV can live a happy and healthy life. Just your kindness and encouragement can help someone feel confident and accepted. Show them that they are not alone.
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